The Chiropractor

Nevaeh has been only turning her head to the left. She would scream and cry if she was made to turn it the other way. We had been doing neck stretches and massages trying to help her. Her Dr. suggested we try the chiropractor. WHAT! I was sooo nervous about that idea. It took me weeks to decide if i would even talk to the chiropractor. We decided to go see Dr. Jolley at Wasatch Spine and Disc in Layton. www.wasatchspineanddisccenter.com Ok so WOW is my word for him. She now is turning her head on her own and did not have to have all the pain to do it. She has only seen him 3 times. I am so impressed and now the only thing i wish i did differently was ...i wish i had gone sooner. We had done daily stretches many times a day for weeks. So many tears we did not have to go thru. Well live and Learn.

Our visit with the cardiologist

We had an appointment on Tuesday with the cardiologist. I was sooooo worried about that he was going to say to me. I really wanted to hear i was doing a good job. The last time we had seen Dr Su he was wanting her milk fortified. She only got that for a couple weeks until she her milk allergy showed up. So she has breast feed only. So I should not worry about what might be. Dr Su was so happy with her gain. He was glad to see we did not keep the feeding tube long. I basically pulled it right after she passed the swallow test. He said she is doing a great job with her growth and he is expecting her to be small. She is growing right along the growth curve. So Nevaeh is 3 months and 8 lbs 15 oz. Dr. Su did say that the VSD (hole in her heart) is not closing as he was hoping. So he is going to want to see her in 5 months. He will then talk to me about closing it if it is still there. He will also look at her aorta to make sure it still has good flow. I just can't believe we are not going back in for months. So over all the appointment was good and i am so happy she is doing well.

Nevaeh and her brothers who love her.

It has been so wonderful to see how much her brothers love her. I am amazed that neither has shown any jealousy toward her. I was expecting it. Josh is always so gentle with her. If she is crying he runs right over and pets her cheek and says "ahhhh". It is too cute! Alex like to care for her. Holding and rocking her. He is very protective of his baby sister. He has given her the nickname Beauty. Josh calls her "Nay Nay". So we will see what sticks. :)

WooooHoooo! 8lbs!

Ohhhhh yeah you heard it right Nevaeh has hit the 8lb mark. I am so excited for her. She is doing such a great job. At 2 1/2 months she has just grown into 0-3 months. She is actually the 5th percentile for weight. That is the same as her big bother Alex. He has always been in the 5th. I have been worried about her weight gain not being able to fortify her milk but now to see she is still about an ounce a day just on breast milk is wonderful. I really feel better.

So I have been getting use to being mom of three. I actually took them to the pumpkin patch twice! So Nevaeh has been on a hay ride 3 times now not bad for 2 1/2 months.

No more feeding tube!

Nevaeh was able to have her feeding tube removed on friday. I was soooo happy to take it out for her. She is nursing very well and not needing anything extra to keep her weight going. She has turned out to be easiest baby i have nursed. Praise God! We all know how stressful it can be at times.

Today (monday) is my first time being a SAHM with three kids and no help. I was so scared that i would not be able to handle this. But my kids planned on making sure i was jumping in with both feet. The boys were up three times last night and one of them alex was bleeding all over the place. He had a bloody nose. I am not sure even now how he got it but it took a while to clean up. by the time i was done Nevaeh was up again to nurse. Oh I was up every hour all night. So my first day 3 kids no sleep. I am actually doing well. My house is a mess but I got Alex to school and back on time and got Nevaeh to the doctor. So i am thinking I am going to be able to do this. :)

So Nevaeh's Dr appointment went great. She gained another 2 ounces over this weekend. So she is right at an ounce a day. Yay!

Very Past due update. :)

We are HOME! Yeah I have been home for 2 weeks now. I thought I would be able to update but it has been CRAZY! We came home the week before my sisters wedding and all my family arrived for her wedding. So it was very busy.

Nevaeh is doing sooooo good. The NJ tube did not end up being as bad as i was expecting. I was so scared to bring her home. But it is not what i had imagined. It was very hard to be attached to a feeding pump 24 hours a day. Between my boys, Nevaeh's medicine, refilling the pump and pumping my milk I was running around like a crazy lady. Nevaeh did give me a little scare. She started to choke and turned white. I was able to help her and i took her right in to see the dr. All was well and we received a monitor to watch her oxygen levels in her blood. Hooked it up and she has not set it off at all.

We had a post opp check-up and she is doing great! She does not need to be seen again until November. Honestly that is a little scary to go that long but i trust them. Besides I have a wonderful ped that is following her so well. I really am thankful to have a dr that cares for my daughter.

So we also had a swallow test and she passed!!! Ohhhh I was so excited. She did so good. She now has a NG tube. I did learn how to place it and it was not bad at all. I started nursing her after her feeds and she took to it so well. Now that is all she wants. :) I have been fortifying my breastmilk but she is allergic to milk and soy. She we were given this other formula Alimentum but she threw it up. So on monday we are back into the doctor to see if we have any other choices. I am hoping that she is gaining well just breastfeeding so i do not have to worry about trying something new. So far she has been gaining well so we will see.

It has been hard with three kids but now that Neveah is not chained to a feeding pump it is a lot easier. I am sure i will get the hang of all this.

Swallow Test was a no go.

Well Nevaeh was awake and alert for her Swallow but did not pass. She aspirated on the fluid they gave her and did not even cough on it. So we have to wait a few weeks to go back in again. I am not sure how this is all going to go and i am really nervous. We are going home sooner than we were before. Don't get me wrong i want to be home but I was wanting to go home with the NG tube not the NJ tube. But as in all other things i am not in control of this and it is something i must just do for her.