Nevaeh update

We have a few things coming up for Nevaeh. She has a well visit with her pediatrician. It is nice really to have well visits. She is still having problems with weight and keeping food down. She is 16lbs at 21 months. So we also have an appointment with a GI doctor. I have no idea what road this will lead down. I a praying for all is normal. Then we have an appointment with the cardiologist. I have decided we are going to see a different one this time to get a fresh view on her. She has a hole and a leaking valve we are watching. So there is the little update nothing new and no answers.