Monday, September 29, 2008

No more feeding tube!

Nevaeh was able to have her feeding tube removed on friday. I was soooo happy to take it out for her. She is nursing very well and not needing anything extra to keep her weight going. She has turned out to be easiest baby i have nursed. Praise God! We all know how stressful it can be at times.

Today (monday) is my first time being a SAHM with three kids and no help. I was so scared that i would not be able to handle this. But my kids planned on making sure i was jumping in with both feet. The boys were up three times last night and one of them alex was bleeding all over the place. He had a bloody nose. I am not sure even now how he got it but it took a while to clean up. by the time i was done Nevaeh was up again to nurse. Oh I was up every hour all night. So my first day 3 kids no sleep. I am actually doing well. My house is a mess but I got Alex to school and back on time and got Nevaeh to the doctor. So i am thinking I am going to be able to do this. :)

So Nevaeh's Dr appointment went great. She gained another 2 ounces over this weekend. So she is right at an ounce a day. Yay!

Sunday, September 21, 2008

Very Past due update. :)

We are HOME! Yeah I have been home for 2 weeks now. I thought I would be able to update but it has been CRAZY! We came home the week before my sisters wedding and all my family arrived for her wedding. So it was very busy.

Nevaeh is doing sooooo good. The NJ tube did not end up being as bad as i was expecting. I was so scared to bring her home. But it is not what i had imagined. It was very hard to be attached to a feeding pump 24 hours a day. Between my boys, Nevaeh's medicine, refilling the pump and pumping my milk I was running around like a crazy lady. Nevaeh did give me a little scare. She started to choke and turned white. I was able to help her and i took her right in to see the dr. All was well and we received a monitor to watch her oxygen levels in her blood. Hooked it up and she has not set it off at all.

We had a post opp check-up and she is doing great! She does not need to be seen again until November. Honestly that is a little scary to go that long but i trust them. Besides I have a wonderful ped that is following her so well. I really am thankful to have a dr that cares for my daughter.

So we also had a swallow test and she passed!!! Ohhhh I was so excited. She did so good. She now has a NG tube. I did learn how to place it and it was not bad at all. I started nursing her after her feeds and she took to it so well. Now that is all she wants. :) I have been fortifying my breastmilk but she is allergic to milk and soy. She we were given this other formula Alimentum but she threw it up. So on monday we are back into the doctor to see if we have any other choices. I am hoping that she is gaining well just breastfeeding so i do not have to worry about trying something new. So far she has been gaining well so we will see.

It has been hard with three kids but now that Neveah is not chained to a feeding pump it is a lot easier. I am sure i will get the hang of all this.

Tuesday, September 2, 2008

Swallow Test was a no go.

Well Nevaeh was awake and alert for her Swallow but did not pass. She aspirated on the fluid they gave her and did not even cough on it. So we have to wait a few weeks to go back in again. I am not sure how this is all going to go and i am really nervous. We are going home sooner than we were before. Don't get me wrong i want to be home but I was wanting to go home with the NG tube not the NJ tube. But as in all other things i am not in control of this and it is something i must just do for her.

Monday, September 1, 2008

Yay! On the floor!

I have not posted in a while nor have i answered many calls. I figured they can all wait, because i am able to hold my baby any time i want! It feels so good and i am so happy! I have also got to dress her. It is amazing how you cherish these things so much more when you are not allowed to do them right away. Nevaeh is doing so well. She will try her swallow test again on Tuesday so for those are praying for her pray she does well. We are in the home stretch and i am eager these days to go home. Oh but scared to death as well.


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