Miss Nevaeh Naughty Girl! :) 8/27/2008

We have had a good last couple of days. Nevaeh has been extubated! Yay! She did so great with it and is still doing good. She received a feeding tube and has been getting breast milk. They have been increasing it on a regular basis sense it was placed. She is having two more drains removed today so, she will almost be drain free. She was a naughty girl yesterday. She pulled our her RA line, and gave everyone a big scare. She ended up being ok. So she took herself off a few meds but thankfully she is doing well without them. Overall she is making great progress and we might go to the floor tomorrow. :)

Forward steps 8-25-2008

It is so nice to keep taking steps forward. They are little baby steps and that is wonderful. I keep praying that she is here healing for as long as she needs so she can come home. She had a great day today. She has her chest tubes removed. The ventilator was turned down to the lowest setting and she got a feeding tube. Yay! I am thankful that she has continued to make progress.

I got to spend the days with my boys today at the zoo. I really needed that time with them. They were excited to see the animals and I was excited to see their smiling faces, hold their little hands and kiss their sweet cheeks. The perfect way to raise my spirits.

8/22/08 Bump in the Road.

I really was picturing Nevaeh's recovery to be uneventful. Really she has made it thru surgery so all should be great and have no problems. Right? Well not really. Talking to other moms and the nurses and doctors it is a roller coaster ride. You just sit back lower the lap bar and pray you got on the little coaster and not the big one.

Nevaeh had her incision closed a little and two heart lines were put in. She was doing well after and all seemed well. But, Nevaeh's Heart rate went up into the 230's and she lost one of the heart lines they had put in and hour earlier. There was a rush of medical staff to help her. What felt like forever she was stable again and doing well. It is so hard to sit back and watch your baby and be able to doing nothing to help her. You have to put your full trust in the medical staff and pray that God guides them through.

Blessings
Lori

Surgery is done

Nevaeh had her surgery today and it went very well. It was longer than what was expected and more difficult than they thought it would be. They were able to do all that they wanted to do and are happy with how she is doing. She is stable and having no complications.

This really has been one of the hardest days of my life. I could not do anything. So i sat and prayed and cried. All i wanted to do was to be able to take this away for her.

We had Alex and Josh with us for the day and they were so good. The were at the hospital by 7am and did not get to leave until 6:30pm. Only the last hour or so were they having a hard time. I was so proud of them.

I need to update you all with pictures but I need to find some time to stop at walmart to get a reader for my memory card so i am able to get them on my laptop. I have taken over 100 pictures already. So i need to do that soon.

Thank you all for all your prayers i am so thankful that so many people are praying for her.

Blessings

Lori

Surgery

Nevaeh is going to have her surgery at 8am Wednesday morning. Thank you all for your prayers. I will try and update as i can.

She is Here!

Sorry this has taken so long to get up on her blog. Nevaeh was born Friday the 15th at 6:37pm Weighing in at 5lbs 12oz. She is doing so good. Better than we expected. Ok so the GREAT part... Her diagnosis has changed! She is no longer L-TGA she is D-TGA! Yay! I am so happy about this.
We do not know the surgery date yet but we are hoping to know soon.

I got to hold her!!!!!!!!!!!! Oh it was so nice. I did not want to put her down! I wanted to hold her forever. She is so beautiful.