Tuesday, July 1, 2008

My Heart.

The diagnosis for Nevaeh is she has Dextocardia, Ventricular inversion, and Transposition of the great Arteries. The combination of Ventricular inversion and Transposition of the Great Arteries is called Congenital Corrected Transposition (cctga). What this means is the Right Ventricle usually feeds the blood to the lungs. So it does not need to produce much pressure to get the blood to the Lungs. But in Nevaeh’s case this ventricle is feeding the blood to her body. This requires the right ventricle to work much harder than it is made to do. The surgery to correct this is very complex so we are waiting and watching her after she is born to see if the right ventricle will be able to handle this extra work. In many cases this is can and does happen. But it is a case by case basis and there is no way to know ahead of time if it is going to be able to pick up the slack. She can still be a normal active little girl as long as the right ventricle does the extra work. So we are praying that God gives her heart the strength it needs to perform properly. In addition to all this there is also a possibility of the Aorta has a narrowing. This means that there is not enough room for all the blood to flow to the body. So I will be delivering at The U right next to Primary Children’s in order to have Nevaeh’s heart looked at right after birth. They will then be able to see if the Aorta has narrowed. If it has then they will perform a minor surgery to fix this problem. We will not know for sure if this is needed until after she is born. So we thank you all for your prayers and ask that you all continue to pray for Nevaeh. You are all more than welcome to tell anyone that would also join us in prayer. The more prayer the better.

Thank you all for your prayers.

The Jones family


Julie said...

Hi, I'm Julie and my son Brigham has Congenitally Corrected Transposition of the Great Arteries. He's nearly 2 and has had a pulmonary artery band put on to condition his left ventricle -- he will be having the double switch surgery sometime in the next few months. We are in the process of diagnostic tests right now to determine if the left ventricle is now strong enough to handle the switch.
I am thinking of your sweet baby. We didn't know of Brigham's defect until he was about 3 months old. It has been quite a journey, but, as you will experience for yourself, I'm sure, life has a funny way of continuing to move forward. We love our little boy so much and continue to pray he will be healthy and live a normal life. You can visit our blog any time. I don't keep a separate one for Brig's heart, but if you scroll down the sidebar, there's a label thing -- you can click on "Brigham's Heart" to see everything I've written about him.

Good luck and you're in my thoughts.

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