Tuesday, February 24, 2009

Long Needed update


Nevaeh is doing wonderfully!!!!!! So let me update you on how things have been for her.

We were having a hard time with weight. She just would not gain. We were doing anything and everything we could think of to increase her weight. I was feeding around the clock every 2 hours! ahhhhh ( who needs sleep right!?). We started solid foods. Well only avocado. She LOVED it! but did not gain any better. She got to a point she was only gaining a 1/2 ounce a week! That is not even close to the 1oz-1/2oz a day she needed to be. I was feeling like i was failing her. I was doing all i could and i felt i just was not good enough.

In the mean time Nevaeh got her first cold. So you would think a mom of three would handle this with ease...ohhh no not me! I was sooo worried. The boys had the same cold no big deal it will run its course. But my Nay Nay! So i called the dr. hmmmmm i was doing everything i should. Ok but ...but ...but I am so scared for my little heart baby to get sick. She did wonderful. It never got bad. A little stuffy nose was all. So i will try to chill out a little more. :)

So we continued not to gain anymore than our half ounce a week. So we ended up at Primary Children s. She had a chest x-ray and an ecco. It seemed like for ever waiting for her cardiologist to come in and let me know how she is doing. GUESS WHAT!!!!!! Her whole (VSD) is closing! ahhhhh! I was so excited. The dr was not expecting to see that because the last appointment there was no change. SOOOOOO drum roll!!!!! No more surgerys!!!! Yahoooooo!!!!!! I am so happy. So we go back in next Aug. That seems like forever! So as far as her weight it is not heart related. So we went back into our pediatrician for our 6 month check up. I was planning to talk to him about weight. Well.........She gained 1lb.3oz!!!! In one month! Wow! I was not doing anything different. So now she is right in the same percentile the boys were at the same age.

So off that roller coaster. What a ride that was. So onto the next one. I thought I had to get in line and wait but nope right back on front row! At least this one does not involve Nevaeh.

9 comments:

Aimee and Hardy said...

That is FANTASTIC news! I am so happy that she's gaining weight and doing so great. She is just adorable.

Thanks again for coming to visit us in the hospital. It was really great to see you.

Christina said...

Yeah for weight gain and a good heart report! Cute photos.

Hugs & Prayers,
Christina
Momma to Jacob (tga)

Jake & Stephanie Ellinger said...

That is great news! Good for her. Getting these kids to grow is something else for sure!

The Smiths said...

Thanks for the update. Wonderful news!!
Im eager for Lily's next weigh in...in about a week. I can't wait to see how much she has grown.
Sour cream seems to be putting the weight on Miss Lily.
Good luck!

Roberta Merrill said...

Just checked in to see have Neveah was doing. She looks beautiful. I am so glad that she is thriving.
Love
Aunt Roberta

The Taylors said...

That is wonderful news about her little heart. I am glad she is gaining the weight. Funny how we want to loose it so bad, and we want our babies to gain. I am so glad she won't need another surgery. YEA! She is so cute. Hope you guys are doing great. We need to set up play dates as soon as the weather is warmer.

Paul Cardall said...

She is beautiful. I'm glad to see her growing and doing so well! What a gift.

I added her blog link to my cardiac kid widget on my blog if you don't mind. All the best!!

Evie's Story said...

What a relief to see her passing those milestones. I can totally relate - Evie has had a time with Failure to Thrive and it has torn me up! She's gaining as well, and Im so grateful. Neveah looks PRECIOUS in the new photos!

carolyn q said...

I totally understand how the feeding every two hour situation was for you. That was Hope's normal feeding schedule as she was also a hard one to get to gain weight.
I am glad that Nevaeh is doing well with gaining now. How exciting that you don't have to be seen again until August. Wahoo!!!
(HUGS)

 
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